Reducing variation
To discuss the risk of SUDEP with Parents/ carers and Children / young people (CYP) and provide them with written information in 75% of clinical encounters by May 2024
Central and North West London NHS Trust
Case studies, resource and posters
Case study - To discuss the risk of SUDEP with parents/carers and children and young people, Central and North West London NHS Trust (1.5MB pdf) Poster - To discuss the risk of SUDEP with parents/carers and children and young people, Central and North West London NHS Trust (2.1MB)To standardise a toolkit for clinicians to use for providing information on SUDEP to families, to enable a personalised yearly discussion on SUDEP with at least 80% of children with epilepsy.
Dr Eleanor Yule, Paediatric neurodisability trainee, Oxford University Hospitals NHS Foundation Trust.
Sustainable QI – SUDEP risk discussion
Dr Rohini R Rattihalli, Consultant Paediatric neurologist, Oxford NHS Trust Foundation
Case studies, resource and posters
Oxford NHS Trust Foundation
Case Study - SUDEP discussion, Oxford NHS Trust Foundation pptx (1.0MB) Case Study - SUDEP discussion, Oxford NHS Trust Foundation PDF (535.1KB pdf) Poster - standardize a toolkit for clinicians to use for providing information on SUDEP to families (372.0KB pdf) Resource - SUDEP example checklist content, Oxford NHS Trust Foundation PDF (108.0KB pdf) Resource - SUDEP example checklist content, Oxford NHS Trust Foundation docx (42.1KB document)Weaning of anti-seizure medications after acute symptomatic seizures: a quality improvement project
Great Ormond Street Hospital for Children team
Case studies, resource and posters
Great Ormond Street Hospital for Children team
Case study - Weaning of anti-seizure medications after acute symptomatic seizures (1.0MB pdf) Poster - Weaning of anti-seizure medications after acute symptomatic seizures (764.5KB)Achieve a full, quality and interpretable routine EEG recording in 95% of all paediatric patients referred within 4 weeks from referral by May 2020
Helen Sneath, Trainee Consultant Scientist, Clinical Neurophysiology, Nottingham University Hospitals NHS Trust
Case studies, resource and posters
Nottingham University Hospitals NHS Trust
Case study - Improving the quality of EEG clinic, Nottingham University Hospitals NHS Trust ppx (1.7MB) Case study - Improving the quality of EEG clinic, Nottingham University Hospitals NHS Trust PDF (1.0MB pdf) Poster - Achieve a full, quality and interpretable routine EEG recording in 95% of all paediatric patients referred within 4 weeks from referral (665.2KB)To develop and implement a pathway for melatonin EEGs in co production with neurophysiology and pharmacy at the Royal Free site by May 2023
Dr Juliet Pearce, Paediatric Consultant, Royal Free NHS Foundation Trust
Case studies, resource and posters
Royal Free NHS Foundation Trust
Case study - implement a pathway for melatonin EEGs, Royal Free NHS Foundation Trust pptx (869.0KB) Case study - implement a pathway for melatonin EEGs, Royal Free NHS Foundation Trust PDF (655.1KB pdf) Poster - develop and implement a pathway for melatonin EEGs in co production with neurophysiology and pharmacy (237.0KB)
To improve the quality of communication for 10% of CYP with complex epilepsy
Dr Anas Olabi, Consultant Paediatrician, University hospitals of Morecambe Bay NHS Foundation Trust
Case studies, resource and posters
Morecambe Bay NHS Foundation Trust
Case study - Improving emergency care, Morecambe Bay NHS Foundation Trust pptx (817.5KB) Case study - Improving emergency care, Morecambe Bay NHS Foundation Trust PDF (440.1KB pdf) Poster - To improve the quality of communication for 10% of CYP with complex epilepsy PDF (817.8KB)Implement integrated care pathway
Luton and Dunstable University Hospital
Sustainable integrated pathway for children and young people admitted to hospital.
Dr Sreenivasa Tekki-Rao, Consultant Paediatrician, Luton and Dunstable University Hospital NHS Foundation Trust
Case studies, resource and posters
Luton and Dunstable University Hospital NHS Foundation Trust
Case study - Implement integrated care pathway, Luton and Dunstable University Hospital NHS Foundation Trust pptx (2.5MB) Case study - Implement integrated care pathway, Luton and Dunstable University Hospital NHS Foundation Trust PDF (1.2MB pdf) Poster - ntegrated pathway for children and young people admitted to hospital. (670.3KB pdf) Resource - example of admissions documentation, Luton and Dunstable University Hospital NHS Foundation Trust (1.4MB pdf) Resource - example of admissions seizure documentation, Luton and Dunstable University Hospital NHS Foundation Trust (369.7KB pdf)To develop a digital epilepsy passport to communicate information to children and young children with the aim of improving their care and reducing risk by June 2020.
York Teaching Hospitals NHS Foundation Trust
Case studies, resource and posters
York Teaching Hospitals NHS Foundation Trust
Case study - Individualised emergency seizure plan, York Teaching Hospitals NHS Foundation Trust PDF (692.7KB pdf) Case study - Individualised emergency seizure plan, York Teaching Hospitals NHS Foundation Trust ppxt (1.2MB) Poster - To develop a digital epilepsy passport to communicate information to children and young children PDF (349.1KB pdf)95% of children and young people presenting in A+E with a first fit will have telephone contact from an epilepsy nurse within 2 weeks of presentation by May 2020.
Royal Berkshire NHS Foundation Trust
Case studies, resource and posters
Royal Berkshire NHS Foundation Trust
Case study - Developing a first seizure telephone clinic, Royal Berkshire NHS Foundation Trust pptx (496.3KB) Case study - Developing a first seizure telephone clinic, Royal Berkshire NHS Foundation Trust PDF (191.0KB pdf) Poster - 95% of children and young people presenting in A+E with a first fit will have telephone contact from an epilepsy nurse within 2 weeks (762.7KB pdf) Resource - A&E first seizure referral process, Royal Berkshire NHS Foundation Trust (126.6KB pdf)60% of first seizure referrals are seen within 2 weeks by May 2023
Medway NHS Foundation Trust
Case studies, resource and posters
Medway NHS Foundation Trust
Case study - Develop a first seizure referral pathway, Medway NHS Foundation Trust pptx (4.5MB) Case study - Develop a first seizure referral pathway, Medway NHS Foundation Trust PDF (922.6KB pdf) Poster - 60% of first seizure referrals are seen within 2 weeks by May 2023 (1.3MB pdf)To develop and implement a pathway for first paroxysmal events allowing review by paediatricians with special interest in epilepsy. We aim that 90% of new epilepsy referrals will be seen within epilepsy clinic within 6 weeks (and 50% within 2 weeks) by May 2020.
Dr Eve Bassett, Consultant Paediatrician, Epilepsy and Neurology Lead, Royal United Hospitals Bath NHS Foundation Trust
Case studies, resource and posters
Royal United Hospitals Bath NHS Foundation Trust
Case study - Development of first seizure pathway, Royal United Hospitals Bath NHS Foundation Trust pptx (11.0MB) Case study - Development of first seizure pathway, Royal United Hospitals Bath NHS Foundation Trust PDF (691.8KB pdf) Poster - To develop and implement a pathway for first paroxysmal events allowing review by paediatricians (1.1MB pdf)To reduce patient waiting times for first appointment in Epilepsy clinic by 50% from 12 weeks to 6 weeks by May 2023
Dr Anil More, Consultant Paediatrician, and Fiona Wortley, Epilepsy Specialist Nurse, The Dudley Group NHS Foundation Group
Case studies, resource and posters
The Dudley Group NHS Foundation Group
Case study - Reducing referral waiting times, The Dudley Group NHS Foundation Group PDF (488.2KB) Case study - Reducing referral waiting times, The Dudley Group NHS Foundation Group pptx (302.2KB pdf) Poster - To reduce patient waiting times for first appointment in Epilepsy clinic by 50% from 12 weeks to 6 weeks by May 2023 (447.7KB pdf)Improve first seizure pathway with key aim to ensure 75% or more of first seizure patients are seen within 2-4 weeks
Dr Jim Baird, Consultant Paediatrician, Salisbury NHS Foundation Trust
Case studies, resource and posters
Salisbury NHS Foundation Trust
Case study - reducing waiting times for first seizure patients, Salisbury NHS Foundation Trust pptx (663.8KB) Case study - reducing waiting times for first seizure patients, Salisbury NHS Foundation Trust PDF (317.7KB pdf)To review 50% of referrals for first seizure by 4 weeks or less by end of March 2022
Dr Beena Kurup, Consultant Paediatrician, North Tees & Hartlepool NHS Foundation Trust
Case studies, resource and posters
North Tees & Hartlepool NHS Foundation Trust
Case study - Reducing wait times for first seizure appointments, North Tees & Hartlepool NHS Foundation Trust pptx (572.4KB) Case study - Reducing wait times for first seizure appointments, North Tees & Hartlepool NHS Foundation Trust PDF (308.0KB pdf) Poster - To review 50% of referrals for first seizure by 4 weeks or less by end of March 2022 (386.2KB pdf)Establish a standardised first year of care pathway for patients with epilepsy diagnosis (sub-projects include the areas of Transition, Mental health, reducing waiting times for first referral)
Dr Fraser Scott, Consultant Paediatrician, West Yorkshire & Harrogate Health and Care Partnership – Integrated Care Structure (ICB) team
Case studies, resource and posters
West Yorkshire & Harrogate Health and Care Partnership - Integrated Care Structure (ICB) team
Case study - standardised first year of care pathway for patients, WYHHCP ICB pptx (1.0MB) Case study - standardised first year of care pathway for patients, WYHHCP ICB PDF (625.9KB pdf) Poster - Reducing waiting times for first seizure referrals - Airedale NHS Trust, ICS team (388.2KB pdf) Poster - Establishing a transition service -Bradford teaching hospital, ICS team (380.9KB pdf) Poster - Reducing waiting times for follow up patients - Leeds teaching hospitals Trust, ICS team (245.6KB pdf) Poster - Reducing waiting times for first seizure referrals - Mid Yorkshire NHS Trust, ICS team (447.2KB pdf)