Patient engagement

On this page you can access training videos and downloadable resources to help you with patient engagement activities and implement your project interventions that was recorded for the previous training wave of EQIP in 2021-2022.

The first patient experience QI engagement session with Dr Pat O’Connor, QI trainer, CEO QI Discovery and Ms Emma Sparrow, RCPCH CYP engagement manager focuses on children’s rights and defining our terms; followed with a team exercise that focuses on what do children think and feel about their health needs when attending NHS service clinics.

The session ends with EQIP teams being asked to:

Develop your definition of engagement for your team so that it is relevant to your context
How does your “what matters to me” activity align with your project plan?
What further PPI steps do you need to take to understand what matters to your patients and their families?

Training videos and slides: RCPCH EQIP patient experience to QI engagement part 1 with Dr Pat O’Connor, QI trainer, CEO QI Discovery and Ms Emma Sparrow, RCPCH CYP engagement manager.

RCPCH EQIP CYP engagement training session part 1

Download the presentation slides from the part 1 CYP engagement training session (4.7MB)

Exploring children and young people’s views, wishes and needs for our services and creating the foundations for engagement.

Downloadable resources to complete within your team: What would patients think of your clinic from their point of view?

Team task: What would patients think of your clinic from their point of view?

Download your patient experience task instructions (95.3KB document)

Create 3 personas of children and young people that your service supports e.g. 14 year old who has English as a second language, 8 year old who doesn’t have friends due to their seizures, 11 year old being assessed for surgery and changing to secondary school; and think about their views, wishes needs of your service from their point of view.

The second patient experience QI engagement session incorporates training by Dr Pat O’Connor, QI trainer, CEO QI Discovery, Ms Emma Sparrow, RCPCH CYP engagement manager, Ms Rosemarie Pardington, Director of Integrated Care, Young Epilepsy and Ms Angie Pullen , Director of Epilepsy Services, Epilepsy Action.

This session included live case studies of patient co-design in project interventions and provided teams with fun ideas and resources for patient and family engagement other than the use of surveys.

The session ends with EQIP teams being asked to:

Create their engagement showstopper using the downloadable template sheet below. As a team think about the key elements of a successful engagement activity:

Statement about your engagement intention
Ideas about how you will turn the intention into action (methods)
Things that could be barriers/risks
Things that are your strengths/will help
How you will measure success
Who needs to be involved?

Training videos slides: RCPCH EQIP patient experience to QI engagement part 2 with Dr Pat O’Connor, QI trainer, CEO QI Discovery and Ms Emma Sparrow, RCPCH CYP engagement manager.

Patient engagement session part 2: Technical case study – Individual engagement by Ms Emma Sparrow, RCPCH CYP Engagement manager

Patient engagement session part 2: Technical case study – OPG MEG, by Ms Rosemarie Pardington, Director of Integrated Care, Young Epilepsy

Patient engagement session part 2: Technical case study – Epilepsy Space, by Ms Angie Pullen , Director of Epilepsy Services, Epilepsy Action

RCPCH EQIP CYP engagement training session part 2

Download the presentation slides from the part 2 CYP engagement training session Bake off challenge - EQIP engagement intentions, examples of engagement in practice and thinking about the key element for successful engagement, including case studies.

Patient engagement Part 2- Bake off recipe of engagement presentation slides (2.3MB pdf) Young Epilepsy case study - OPM-MEG engagement project (190.9KB pdf) Epilepsy Action case study - 16+ engagement (210.8KB pdf) RCPCH &US case study - individual engagement (140.1KB pdf)

Downloadable resources to complete within your team: Showstopper recipe for engagement

Team task: The great engagement bake off

Download your team showstopper recipe for engagement (869.8KB document)

We are going to be asking you to create your engagement showstopper. Using this downloadable template, as a team think about the key elements of a successful engagement activity: • Statement about your engagement intention • Ideas about how you will turn the intention into action (methods) • Things that could be barriers/risks • Things that are your strengths/will help • How you will measure success • Who needs to be involved?

Recipes for Engagement

60+ free online resources to support children and young people in their health journey. To access our resources:

Recipes for engagement (Activities)
Recipes for rights (Activities)
Getting started with engagement
RCPCH approach to engagement (click the children and young people’s engagement section)
Sign up to the Engagement Collaborative newsletter 6 times a year
Email the RCPCH&US team: and_us@rcpch.ac.uk

NICE guidance

Additional resource to guide teams through engaging children and young people within your service: My Health Experience Checklist https://www.nice.org.uk/guidance/ng204/resources/visual-summary-pdf-9204587245

Resources

Digital Youth Work

Digital Youth Work isn’t that different to youth work but youth workers who use digital in their practice, don’t need to be experts. Click here to find out more about what it is and what resources are available.

Me first

Me first has been developed in partnership with health and social care professionals and children and young people.  We want to collect and grow a hub of resources to share ideas and expertise in communicating with children and young people. https://www.mefirst.org.uk/resources/

We can talk

We Can Talk is using coproduction to improve the experience of children and young people who attend hospital due to their mental health and the staff who support them. Click here to find out more.

The Mix

The Mix is the UK’s leading support service for young people. We are here to help you take on any challenge you’re facing – from mental health to money, from homelessness to finding a job, from break-ups to drugs. Talk to us via our online community, on social, through our free, confidential helpline or our counselling service. https://www.themix.org.uk/

YoungMinds

From wellbeing activities for schools, to toolkits and webinars for mental health professionals, we have a range of resources to help you support the young people in your lives. https://www.youngminds.org.uk/professional/resources/

PSHE resources

Explore the flexible teaching resources for primary school classes and be inspired by our mental wellbeing resources for secondary schools and Year 6.

https://campaignresources.phe.gov.uk/schools

https://pshe-association.org.uk/content/resources-and-curriculum

Transition to adult services

How do we ensure high quality care for young people as they move from children's to adult's health services? We bring together best practice examples, resources and experiences of young people.

Find out more

Children and Young People's Engagement

RCPCH &Us tools to support trainees, paediatricians and healthcare professionals working with children and young people.

Find out more

Epilepsy12 &Us - voices from the RCPCH &Us network

Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. Epilepsy12 worked with their Youth Advocates to produce a summary report.

Read there report here