Paediatric epilepsy service teams have recorded their us on their quality improvement journey; celebrated their achievements; explained what they've learned and how they adapted under the ongoing pressures of the pandemic.
The quality improvement training programme aims to support paediatric epilepsy teams to work together in defining their shared aim, identifying current gaps in service provision and developing practical interventions matching their capacity and resources.
Over 25 teams provide content on their journey and project outcomes, lessons learnt from the paediatric epilepsy services and ideas on how quality improvement can be sustained in future.
Presentations from EQIP teams shared their learning from their project interventions that covered a variety of QI topics on: reducing waiting times for new referrals, SUDEP discussion, mental health support pathways and establishing a transition service to name a few. The teams share their honest experiences on their journey which resulted in enthused interest from the audience requesting further details on how they could implement their own local service improvements.
Visit or social media at #RCPCHEQIP for future updates on the teams. If you have any questions about the event, or would like to contact the EQIP teams, please email the EQIP team at email@example.com.
Improve first seizure pathway with key aim to ensure 75% or more of first seizure patients are seen within 2-4 weeks.
Dr Jim Baird, Consultant Paediatrician, Salisbury NHS Foundation Trust.
To review 50% of referrals for first seizure by 4 weeks or less by end of March 2022.
Dr Beena Kurup, Consultant Paediatrician, North Tees & Hartlepool NHS Foundation Trust.
To develop and implement a pathway for first paroxysmal events allowing review by paediatricians with special interest in epilepsy. We aim that 90% of new epilepsy referrals will be seen within epilepsy clinic within 6 weeks (and 50% within 2 weeks).
Dr Eve Bassett, Consultant Paediatrician with interest in Epilepsy & Neurology at Royal United Hospitals Bath NHS Foundation Trust
Implementing integrated pathway for children and young people admitted to hospital.
Dr Sreenivasa Tekki-Rao, Consultant Paediatrician, Luton and Dunstable University Hospital NHS Foundation Trust.
Children and young people presenting in A+E with a first fit will have telephone contact from an Epilepsy Nurse within 2 weeks of presentation. This is to be in place 50% of the time by the end of January and 95% of the time by May 2020.
Royal Berkshire NHS Foundation Trust’s team
To improve the quality of communication for 10% of CYP with complex epilepsy.
Dr Anas Olabi, Consultant Paediatrician, University hospitals of Morecambe Bay NHS Foundation Trust.
To improve epilepsy communication for our children and young people with the aim of improving their care and reducing risk.
Ms Ailsa Grassam, Epilepsy Specialist Nurse at York Teaching Hospitals NHS Foundation Trust
To standardize a toolkit for clinicians to use for providing information on SUDEP to families, to enable a personalized yearly discussion on SUDEP with at least 80% of children with epilepsy.
Dr Eleanor Yule, Paediatric neurodisability trainee, Oxford University Hospitals NHS Foundation Trust.
Establishing a Transition Service.
Ms Louise Capeling, Children’s Epilepsy Nurse Specialist at Aneurin Bevan University Health Board.
To improve and adapt the transition and information sharing process for the children and young people with epilepsy in Croydon by March 2022.
Ms Anne Makunde, Epilepsy Specialist Nurse, Croydon Health Service NHS Trust.
To offer transition as a staged approach equitably from 19% to 100% of our patients aged 14 years and over.
Ms Lucy Miller, Epilepsy Specialist Nurse, East Lancashire Hospital Trust.
Identify and implement a mental health screening tool for CYP with epilepsy to identify those at risk.
Ms Nichola Hodges, Epilepsy Specialist Nurse, Epsom and St Helier University NHS Trust.
Improving mental health pathway using signposting.
Dr Sharmila Manivanna Consultant Paediatrician, North-West Anglia Foundation Trust.
South Tees Hospitals’ team presentation describing their journey and improvement project based on 50% of children aged 12-16 years with a diagnosis of epilepsy- without a learning difficulty – and their parents/carers attending paediatric epilepsy review clinic before the end of April 2020, how the epilepsy service can support their wellbeing.
To strengthen mental health referral pathways and To develop a mental health support package for teenage patients.
Dr Katherine Hunter, Consultant Paediatrician, Warrington and Halton Teaching Hospitals NHS Foundation Trust.
Obtain meaningful feedback on our service from 50% CYPF by March 2022.
Ms Joanne Edwards, Paediatric neurology specialist nurse, Barts Health NHS Trust
To access the patient voice in 80% of patients accessing epilepsy services at Chelsea & Westminster and West Middlesex Hospitals, between January and March 2020, to influence improvements (which improvements give examples) in cross-site epilepsy care.
Chelsea and Westminster Hospitals’ team.
By March 2022, 70% of patients aged 11-19 years will have digital feedback forms offered in Clinics (Consultant and Nurse led) and on acute Paediatric ward.
Dr Suhail Habib, Consultant Paediatrician, Doncaster and Bassetlaw NHS Foundation Trust.
To obtain feedback from 50% of patient/families seen in tertiary Epilepsy Clinic in January and February 2020 regarding their perceived appropriateness of the time interval between follow up appointments. This will allow us to identify any current problems so we can make improvements to our clinic booking service.
Guy’s and St Thomas’ NHS Foundation Trust’s team.
Our vision is to have a service which is person centred. We aim to have an ongoing feedback loop with the ideal scenario of having a feedback forum.
Southport and Ormskirk Hospital’s team
Establish a standardised first year of care pathway for patients with epilepsy diagnosis (sub-projects include the areas of Transition, Mental health, reducing waiting times for first referral).
Dr Fraser Scott, Consultant Paediatrician, West Yorkshire & Harrogate Health and Care Partnership – Integrated Care Structure (ICS) team.
To improve patient experience in outpatient MDT ketogenic diet clinic.
Manchester University Hospitals’ team
Achieve a full quality and interpretable routine EEG recording in 95% of all paediatric patients referred within 4 weeks from referral by May 2020.
Nottingham University Hospitals’ team.