South Tees Hospitals NHS Foundation Trust

Project aim: To ask 50% of children aged 12-16 years with a diagnosis of epilepsy- without a learning difficulty – and their parents/carers attending paediatric epilepsy review clinic before the end of April 2020, how the epilepsy service can support their wellbeing.

Project aim

To ask 50% of children aged 12-16 years with a diagnosis of epilepsy- without a learning difficulty – and their parents/carers attending paediatric epilepsy review clinic before the end of April 2020, how the epilepsy service can support their wellbeing.

Tests, changes made and what was learned in the process

December 2019

Planned to start on 22/11/2019 but no suitable patients available. Planned to use first time on 25/11/2019

January 2020

To alter questions to make them easier to understand and start using improved questions in clinic from 02/12/2019

February 2020

Set up 2 boards so that 1 can stay at each hospital site.

Challenges and retesting

December 2019

  • Setting up the board to allow it to be useable but easy to alter if needed
  • Wording questions in a way that is easily understood by patients & parents
  • How to get patients and young people to use the board separately

January 2020

  • Staff remembering to take the board to and from clinic
  • How to get patients and young people to use the board separately

February 2020

Waiting for a suitable patient to take part. It took 2/3 weeks for the 10th patient to attend clinic.

Results

December 2019

Two young people and 2 parents used the board in clinic on 25/11/2019. It seemed easy to use but it was noted that some of the questions required clarifying.

January 2020

The new questions are working better and starting to gather useful data.

February 2020

Didn’t set up the new board as we only needed 1 more patient to meet the  criteria for the last set of questions so we are waiting until the next set of questions are done until that 2nd board goes live.

Next steps

Develop next set of questions and set up 2nd board.

Meeting with some of the team on Wednesday 19/02/2020.


Team presentation

South Tees Hospitals’ team presentation at the EQIP celebration event describing their journey and improvement project based on obtaining feedback from 50% of children aged 12-16 years with a diagnosis of epilepsy attending their review clinic:


Would you like to know more about these projects? If you would like to contact any of these teams about their QI work then please get in touch with the EQIP faculty at eqip@rcpch.ac.uk

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