Epilepsy12 & OPEN UK National Conference 2020

On 10 September 2020, we hosted our third annual Epilepsy12 & Organisation of Paediatric Epilepsy Networks (OPEN UK) National Conference 2020: 'Working Together to Improve Epilepsies’, as a live webinar.

By meganpeng · 11 September 2020

More than 170 health professionals working in support of paediatric epilepsy services and patient organisation representatives from across England and Wales came together virtually at the third Epilepsy12/OPEN UK National Conference.

They joined the conference with the joint aim of learning from each other and improving the care offered to children and young people with epilepsies.

Event Programme

The conference was chaired by Professor Finbar O’Callaghan, Professor of Paediatric Neuroscience at UCL, (Hon) Consultant Paediatric Neurologist and President of the British Paediatric Neurology Association (BPNA).

One of the conference aims was to amplify the voice of children and young people who live with epilepsies. This was achieved through the inclusion of an interactive symposium led by the Epilepsy12 Youth Advocates, which showcased the impact of their diligent and ground-breaking work in the face of COVID-19.

In addition, the conference had presentations on OPEN UK-led quality improvement activities, Epilepsy12 audit results from the 2020 combined national report and a quality improvement (QI) showcase session.

EQIP Presentations from the day

RCPCH Epilepsy Quality Improvement Programme (EQIP) Presentation Showcase by  Dr Patricia O’Connor, Honorary Professor, University of Stirling in the Faculty of Healthcare Sciences and Sport, and Executive Director, QI Discovery:



Establishing a Transition Service, by Ms Louise Capeling, Children’s Epilepsy Nurse Specialist, Aneurin Bevan University Health Board EQIP team

Quality and timely EEG recordings at Nottingham University Hospitals NHS Trust, by Ms Helen Sneath, Trainee Consultant Scientist, Nottingham University Hospitals NHS Trust EQIP team

Improving the Paediatric Epilepsy Pathway – One Seizure at a Time, by Dr Eve Bassett, Consultant Paediatrician with interest in Epilepsy & Neurology, Royal United Hospitals Bath NHS Foundation Trust EQIP team

Improving epilepsy information on electronic records including emergency health care plans becoming more easily accessible via an electronic record, by Ms Ailsa Grassam, Epilepsy Specialist Nurse, York Teaching Hospitals NHS Foundation Trust EQIP team

Epilepsy12 Youth Advocates with Emma Sparrow and Emma Hosking from the RCPCH Children and Young People’s Engagement team also hosted a children and young people led symposium.

Visit the team pages for more information and find out about the Epilepsy Youth Advocates here.