RCPCH EQIP – Innovations to improve care for paediatric epilepsy patients

On 9 June 2023, almost 12 paediatric epilepsy service teams (which includes one ICS team) took us on their quality improvement journey; celebrated their achievements; explained what they've learned.

The quality improvement training programme aims to support paediatric epilepsy teams to work together in defining their shared aim, identifying current gaps in service provision and developing practical interventions matching their capacity and resources. Presentations from EQIP teams shared their learning from their project interventions that covered QI topics on: reducing variation, mental health support pathways. The presenters shared their honest experiences on their journey which resulted in enthused interest from the audience, great discussion points and reflections on their own local service improvements.

If you have any questions about the event, or would like to contact the EQIP teams, please email the EQIP team at eqip@rcpch.ac.uk.

Delegate testimonies on the day

"Fantastic collaboration with excellent support from the EQIP team all throughout the journey".

"I liked the idea of small projects being encouraged and the fact that small results can be useful".

"Inspiring /fun /motivational quality change".

"Excellent initiative and perfect arrangements. Thoroughly enjoyed the conference and have returned with a flurry of ideas to improve
our own service".

EQIP event delegates

2023 presentations on the day

Sustainable QI – SUDEP risk discussion

Dr Rohini R Rattihalli, Consultant Paediatric neurologist, Oxford NHS Trust Foundation

To develop and implement a pathway for melatonin EEGs in co production with neurophysiology and pharmacy at the Royal Free site by May 2023

Dr Juliet Pearce, Paediatric Consultant, Royal Free NHS Foundation Trust

 

To reduce patient waiting times for first appointment in Epilepsy clinic by 50% from 12 weeks to 6 weeks by May 2023

Dr Anil More, Consultant Paediatrician, and Fiona Wortley, Epilepsy Specialist Nurse, The Dudley Group NHS Foundation Group

 

60% of first seizure referrals are seen within 2 weeks by May 2023

Teresa McIntyre, Paediatric Epilepsy Specialist Nurse and Dr Mercedes Munteanu, Lead Consultant Paediatrician, Medway NHS Foundation Trust

 

 

To optimise mental health support pathways for 10–16-year-olds with mental health difficulties and epilepsy by June 2023

Susan Mulhall, Paediatric Epilepsy Specialist Nurse , Great Western Hospital NHS Trust

 

To develop and implement by Summer 2023 a mental health guide for all children and young people 11 to 17 focused on understanding and managing emotions

Lianne Fielding, Paediatric Epilepsy Specialist Nurse, Tameside and Glossop Integrated Care NHS Foundation Trust

 

To improve our knowledge about the wider needs of 10 patients with Epilepsy under the care of the BNHH paediatric epilepsy team by April 2023

Dr Gabriel Whitlingum, Consultant in Paediatric Neurodisability, Dr Danielle McLymont, Principal clinical child psychologist, Hampshire Hospitals NHS Trust

 

By May 31st, 2023, 60% of 9-18 years old Epilepsy patients in South Yorkshire ICS will have access to mental health screening supported with referral pathway as per local trust pathway

Dr Suhail Habib, Consultant Paediatrician Epilepsy Interest, Dr Fharhad Motaleb, Consultant Paediatrician Epilepsy Interest and Carys Amies, ICS Clinical Lead, South Yorkshire ICS

 

 

To improve our knowledge about the wider needs of 10 patients with Epilepsy under the care of the BNHH paediatric epilepsy team by April 2023.

Examples of CHECC Child and Young person Epilepsy Concerns Checklist. A holistic epilepsy and wider needs surveillance tool by Dr Gabriel Whitlingum, Consultant in Paediatric Neurodisability, Dr Danielle McLymont, Principal clinical child psychologist, Hampshire Hospitals NHS Trust

CHECC - Children and Young peoples version (44.5KB document) VisualV1 - Download Created with Sketch. CHECC - School and Nursery version (39.3KB document) VisualV1 - Download Created with Sketch. CHECC - Parent/Carer version (44.1KB document) VisualV1 - Download Created with Sketch.

2022 RCPCH EQIP – Innovations to improve care for paediatric epilepsy patients, presentations on the day

Improve first seizure pathway with key aim to ensure 75% or more of first seizure patients are seen within 2-4 weeks.

Dr Jim Baird, Consultant Paediatrician,  Salisbury NHS Foundation Trust.

To review 50% of referrals for first seizure by 4 weeks or less by end of March 2022. ​

Dr Beena Kurup, Consultant Paediatrician, North Tees & Hartlepool NHS Foundation Trust.

To improve the quality of communication for 10% of CYP with complex epilepsy.

Dr Anas Olabi, Consultant Paediatrician, University hospitals of Morecambe Bay NHS Foundation Trust.

To standardize a toolkit for clinicians to use for providing information on SUDEP to families, to enable a personalized yearly discussion on SUDEP with at least 80% of children with epilepsy.

Dr Eleanor Yule, Paediatric neurodisability trainee, Oxford University Hospitals NHS Foundation Trust.

To improve and adapt the transition and information sharing process for the children and young people with epilepsy in Croydon by March 2022.

Ms Anne Makunde, Epilepsy Specialist Nurse, Croydon Health Service NHS Trust.

To offer transition as a staged approach equitably from 19% to 100% of our patients aged 14 years and over.

Ms Lucy Miller, Epilepsy Specialist Nurse, East Lancashire Hospital Trust.

Identify and implement a mental health screening tool for CYP with epilepsy to identify those at risk.

Ms Nichola Hodges, Epilepsy Specialist Nurse, Epsom and St Helier University NHS Trust.

Improving mental health pathway using signposting.

Dr Sharmila Manivanna Consultant Paediatrician, North-West Anglia Foundation Trust.

To strengthen mental health referral pathways​ and To develop a mental health support package for teenage patients.

Dr Katherine Hunter, Consultant Paediatrician, Warrington and Halton Teaching Hospitals NHS Foundation Trust.

Obtain meaningful feedback on our service from 50% CYPF by March 2022.

Ms Joanne Edwards, Paediatric neurology specialist nurse, Barts Health NHS Trust

 

By March 2022, 70% of patients aged 11-19 years will have digital feedback forms offered in Clinics (Consultant and Nurse led) and on acute Paediatric ward.

Dr Suhail Habib, Consultant Paediatrician, Doncaster and Bassetlaw NHS Foundation Trust.

Establish a standardised first year of care pathway for patients with epilepsy diagnosis (sub-projects include the areas of Transition, Mental health, reducing waiting times for first referral).

Dr Fraser Scott, Consultant Paediatrician, West Yorkshire & Harrogate Health and Care Partnership – Integrated Care Structure (ICS) team.

Implementing integrated pathway for children and young people admitted to hospital.

Dr Sreenivasa Tekki-Rao, Consultant Paediatrician, Luton and Dunstable University Hospital NHS Foundation Trust.

Poster presentations

EQIP Event poster presentations and programme of events

EQIP programme of events on the day (179.8KB pdf) VisualV1 - Download Created with Sketch. Reducing waiting times for first seizure referrals - Airedale NHS Trust, ICS team (388.2KB pdf) VisualV1 - Download Created with Sketch. Improving Patient and family engagement - Barts Health NHS Trust (214.0KB pdf) VisualV1 - Download Created with Sketch. Establishing a transition service -Bradford teaching hospital, ICS team (380.9KB pdf) VisualV1 - Download Created with Sketch. Improving Patient and family engagement - Doncaster and Bassetlaw NHS Foundation Trust (680.7KB pdf) VisualV1 - Download Created with Sketch. Mental health pathways - Epsom and St Helier University NHS Trust (569.6KB pdf) VisualV1 - Download Created with Sketch. Reducing waiting times for follow up patients - Leeds teaching hospitals Trust, ICS team (245.6KB pdf) VisualV1 - Download Created with Sketch. Reducing waiting times for first seizure referrals - North Tees & Hartlepool NHS Foundation Trust (386.2KB pdf) VisualV1 - Download Created with Sketch. Reducing waiting times for first seizure referrals - Mid Yorkshire NHS Trust, ICS team (447.2KB pdf) VisualV1 - Download Created with Sketch. Digitalisation of the RCPCH Epilepsy passport - University of Morecambe Bay Trust (808.4KB pdf) VisualV1 - Download Created with Sketch. SUDEP Risk - Oxford University NHS Trust (372.0KB pdf) VisualV1 - Download Created with Sketch. Improving CYP wellbeing - Warrington & Halton Teaching hospital Trust (1.6MB pdf) VisualV1 - Download Created with Sketch. Improving the transition process for CYP - Croydon (492.6KB pdf) VisualV1 - Download Created with Sketch.